The Parkinson@home study
Initiatives
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This study aims to assess the feasibility of implementing wearable technology to collect data from multiple sensors during the daily lives of Parkinson's Disease patients.
Note: All published information has been collected from the article referenced in the Marker Paper box below. Therefore, there may be variations with more advanced versions of the study.
- Start Year
- 2015
- Funding
- Michael J Fox Foundation (https://www.michaeljfox.org/), Intel Corporation (https://www.intel.com), Stichting Parkinson Fonds (https://www.parkinsonfonds.nl/), The Netherlands Organisation for Health Research and Development (https://www.zonmw.nl/en/),Philips Research (https://www.philips.com/aw/research/home.html),UCB pharma (http://www.ucb.com/), and the Movement Disorders Society (https://www.movementdisorders.org/MDS.htm). The author Ana Lígia Silva de Lima is supported by Coordenação de Aperfeiçoamento de Pessoal de Nível Superior—CAPES (http://www.capes.gov.br/) [grant number 0428-140].
Visit Silva de Lima et al.; PLoS One. 2017
Design
- Study design
- Patients' cohort
Marker Paper
Silva de Lima AL, Hahn T, Evers LJW, et al. Feasibility of large-scale deployment of multiple wearable sensors in Parkinson's disease. PLoS One. 2017;12(12):e0189161. Published 2017 Dec 20. doi:10.1371/journal.pone.0189161
PUBMED 29261709
Recruitment
- Sources of Recruitment
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- Individuals
Number of participants
- Number of participants
- 953
- Number of participants with biosamples
Access
Availability of data and biosamples
Data | |
Biosamples | |
Other |
Availability of access information
On the study website : https://www.michaeljfox.org/
Supplementary Information
https://www.michaeljfox.org/data-sets
Timeline
Patients with Parkinson's Disease (PD)
The participants were recruited from support groups, internet communities and through physiotherapists specialized in treating PD patients. Enrolment criteria were: (1) ≥30 years of age, (2) possession of a smartphone using an Android OS version ≥ 4.2 and (3) self-reported diagnosis of PD. No exclusion criteria were applied beyond enrolment criteria.
Selection Criteria
- Newborns
- Twins
- Countries
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- Netherlands
- United States of America
- Canada
- Territory
- Ethnic Origin
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- Health Status
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- Patients with Parkinson's Disease (PD)
Recruitment
- Sources of recruitment
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- Specific population
Number of participants
- Number of participants
- 953
- Number of participants with biosamples
Data Collection Event
Participants used the Fox Wearable Companion app on a smartwatch and smartphone for a minimum of 6 weeks (NAM) or 13 weeks (NL). Sensor-derived measures estimated information about movement. Additionally, medication intake and symptoms were collected via self-reports in the app.
- Start Date
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2015-08
- End Date
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2016-11
- Data sources
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Mobile data collection
- Smartphone
- Smartphone apps
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Mobile data collection