Individual Study / ITR

The Italian Twin Registry

The Italian Twin Registry

Initiatives -
A valuable resource for genetic epidemiological research.
Start Year
2001
Funding
Italian Ministry of Health
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Members

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Investigators Contacts
  • Emanuela Medda
    Italian National Institute of Health

Design

Study design
Population cohort
Follow Up
Ability to perform record linkages between personal twin data and disease data from registers held in clinical centers in order to identify twins affected by a certain disease in a multicenter study setting. It depends on the study, but usually information is obtained using self-administered standardized questionnaires through regular mail. Recently, a web-based platform was implemented. In specific studies regarding outpatients’ examinations, health information and clinical measurements are collected by trained physicians in selected hospitals.

Marker Paper

Fagnani C, Brescianini S, Cotichini R, D'Ippolito C, Dukic T, Giannantonio L, Medda E, Nisticò L, Patriarca V, Pulciani S, Rotondi D, Toccaceli V, Stazi MA. The Italian Twin Register: new cohorts and tools, current projects and future perspectives of a developing resource. Twin Res Hum Genet. 2006 Dec;9(6):799-805. doi: 10.1375/183242706779462624.

PUBMED 17254411

Recruitment

Sources of Recruitment
  • Families

Number of participants

Number of participants
9,000
Number of participants with biosamples
Supplementary Information
Twin pairs

Access

Availability of data and biosamples

Data
Biosamples
Other