- Study design
- Population cohort
- Follow Up
- Ability to perform record linkages between personal twin data and disease data from registers held in clinical centers in order to identify twins affected by a certain disease in a multicenter study setting. It depends on the study, but usually information is obtained using self-administered standardized questionnaires through regular mail. Recently, a web-based platform was implemented. In specific studies regarding outpatients’ examinations, health information and clinical measurements are collected by trained physicians in selected hospitals.
Fagnani C, Brescianini S, Cotichini R, D'Ippolito C, Dukic T, Giannantonio L, Medda E, Nisticò L, Patriarca V, Pulciani S, Rotondi D, Toccaceli V, Stazi MA. The Italian Twin Register: new cohorts and tools, current projects and future perspectives of a developing resource. Twin Res Hum Genet. 2006 Dec;9(6):799-805. doi: 10.1375/183242706779462624.
- Sources of Recruitment
Number of participants
- Number of participants
- Number of participants with biosamples
- Supplementary Information
- Twin pairs
Availability of data and biosamples