Breast Cancer Family Registry Cohort
- Start Year
- National Cancer Institute
- Study design
- Population cohort
- Follow Up
- Selected participants are being followed to obtain updated information on cancer and vital status of family members. For the clinic-based families in the USA, at least one participant from each family is contacted annually to update personal and family cancer histories and deaths, as well as some exposures addressed in the core epidemiology questionnaire. In Ontario, an annual mailed follow-up questionnaire to case probands seeks to update births, deaths, and new cancer diagnoses of case probands and family members. The San Francisco site contacts case probands annually by telephone to update information on cancer and vital status of the proband and family members. In Australia, passive record linking to state cancer registries and death certificates is being conducted, and the medical records of case probands have been followed up for recurrence and death.
John EM, Hopper JL, Beck JC, Knight JA, Neuhausen SL, Senie RT, Ziogas A, Andrulis IL, Anton-Culver H, Boyd N, Buys SS, Daly MB, O'Malley FP, Santella RM, Southey MC, Venne VL, Venter DJ, West DW, Whittemore AS, Seminara D; Breast Cancer Family Registry. The Breast Cancer Family Registry: an infrastructure for cooperative multinational, interdisciplinary and translational studies of the genetic epidemiology of breast cancer. Breast Cancer Res. 2004;6(4):R375-89. doi: 10.1186/bcr801. Epub 2004 May 19.
- Sources of Recruitment
Number of participants
- Number of participants
- Number of participants with biosamples